Hereditary conditions and CON donors
What does it mean if a donor has a condition?
In a fast-developing world with increased genetic screening, Cryos is transparent about the fact that some of our donors have genetic conditions. Genetic conditions, also commonly referred to as hereditary conditions, are present in the general population and thus also in a selection of our donors.
If we receive information about a possible hereditary condition in a donor or a donor child, the information will be assessed. If there is a possibility that it is related to the donor, the information is made available on our website. A registered condition does not mean that the donor cannot be used. For more information please see the section below: Who can use a CON donor?
Who can use a CON donor?
Donors who have been registered with a genetic condition can only be used if the intended client reads their conditional details and signs the release stating that they understand the risk involved.
It is a fact that all individuals, and, hence, also all donors and recipients are carriers of several mutations associated with hereditary diseases including diseases with recessive and multifactorial inheritance. Therefore, it is not possible to eliminate this risk. It can be misleading to withdraw donors with registered conditions because recipients might believe that the donors who can be purchased, cannot be associated with hereditary diseases.This is not the case, as we know that all people are carriers of hereditary diseases, we just do not know the type of disease.
For donors with registered conditions, we have gained knowledge of a specific condition and subsequently, when possible we have also established a risk assessment concerning the specific condition. This allows the client to make an informed decision when selecting a conditional donor.
In a number of cases where it has been possible to identify the exact mutation in a specific gene causing a recessive disease, it is possible to eliminate the risks involved in using this donor by being tested for those specific mutations. For other types of inheritance, information on the severity of the specific condition together with the risk assessment provides the client with the information to decide whether the recipient still wants to use the given donor.
To conclude, if you want to buy sperm from a donor with a registered condition, you must declare that you have received and understood the information concerning the registered condition.
Furthermore, we strongly recommend that you seek local genetic counselling regarding questions about using a donor with a registered condition.
How do I report a suspected condition in a donor?
To report a suspected condition, send us an e-mail or call our Customer Service.